" Our lives begin to end when we remain silent about things that matter "

... Dr Martin Luther King

M ental I llness Concerns All carers

First Draft

Living with schizophrenia

What you are going to do, or will have to be doing next, is set up
by assembling - priming - an initial brain network; getting ready in the brain what is required towards moving forward a mental intention,
then the appropriate associations have to be drawn onto to that priming.
When the momentum of the initial prime is lost to retrieval, the purpose is not steered forward.
Then, it helps to have planted anchor points in a diary, built up from practice in outside engagement, mapping in the brain store of memory, an outline of what will come to be be aimed at.

A routine to the day, a regular diary, recalling the process of engagement during the last week, ready for the week to come, helps to recover the aim.

If the original holding intention cannot be recaptured, or not fully, that brings anxiety about the completion of the original intent.
Anxiety - emotion - unlike the initial intent, hangs around - it's time scale has a longer influence, and may be there when other matters come up to be dealt with.
If you are obsessional in personality, and therefore inward moving, rumination over anxiety persists, frustration amasses, and this background of continuing uncertainty, leads to restlessness, and to anger.

Emotions which unsettle the illness.

Memory failure in schizophrenia: three studies

Kraepelin had an alternative designation for this illness - dementia praecox where the disability was like that in the dementia of old age, but occurring in younger adults, persistent, but not necessarily leading to a similar deterioration

Ordinarily, experience whilst ongoing, alters and adjusts the stock of memory associations

A continuing residual schizophrenia does not allow the same upgrading of the old reliabilities..

It is difficult to accept these failings in memory as a permanent obstacle to recovery in schizophrenia, because we do see recovery , even after years.

That suggests this memory disability is remediable - not a reflection of cell loss as in old age dementias
- but a loss of access to some functioning brain property that may have withered from disuse
- usage having brought mistakes - so use was abandoned.

' no use, then disuse, then loss of use'.

Negative schizophrenia does little to call upon memory.
Positive schizophrenia makes mistakes.

If calling upon memory is uncertain, forward commitmentr to an intention is difficult and accompanied by failures.

Sufferers are often more successful, where there is for them a longstanding experience and a personal interest,
where an intention comes from inside; the relevance and context are there to be revived and reconnected through sheltered renewal of outside experience.

Where the subject is new to sufferer in an 'outside matter', an expectation from without,
memory has to look for, sort out. call up inside memory experiences and 'decide' which of those is relevant.
First by appreciating what is the relevant 'inside' experience to match with what is coming from the 'outside needs ' so as to engage.
Then revising and reviewing and updating the background memories, as the outside commitment and connection goes forward.


Like any other rehabilitation, revision of memory difficulty, rebuilding - where the facility is not lost but not used - goes ahead by exposure, incrementally from an easy beginning.

This requires :-

1. an appraisal of educational attainment

2. A discovery of the personal interests and experience of the sufferer, so as to encourage engagement

3. An examination of what menu of activities is available locally for the sufferer, taking into account travelling problems.

4. a lead figure, acceptable to sufferer, without past confrontational baggage, who can be a deliverer of motivation,
a companion into the initial engagement, who can continue to settle the sufferer into the activity chosen, to achieve continuing participation outside the domicile

Most people have an ongoing work or domestic schedule or a domestic routine from which they can call up well used experience in memory.
The networks which support these are primed and ready.

Schizophrenia sufferers have lost their bearings.
They have to start again, to engage with an outside activity framework, to build up from assisted engagement, the re-awaking and re-connecting, of the internal brain networks that are associated with the process of going into activities and being with the people there.

Hopefully, this re-building of the ability to connect inside record with outside 'doing', will generalise.

It should start immediately with early intervention.
Unfortunately where the illness comes in early and late adolescence personal and domestic care is not a settled thing, the menu of activities ars not fully developed nor readily available, and interest lapses. Supporting companions are not there.

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Carers - at the needs assessment stage of the initial contact in the Care Programme Approach [ which all teams adopt ]
have to put in as a requirement, as a necessary provision for longterm supporting of home care,
Trust documentation that a weekly diary of engagements as above will be a necessary part of continuing care;
and until the outside activities are found and delivered for the patient, they remain documented as a failure of service delivery, documented as UNMET NEEDS to be addressed again at every Review stage of the Care Programme Approach

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