caring for schizophrenia ?

"To be overlooked, and to know it, are [sic] intolerable" John Adams: founding father US


mica2@tiscali.co.uk.... back to Home page

mental health carers

general health carers

male ... 23.7 %
female .... 76.3%

Q8. how old are you Under 18 ... 1.2%
18-34 ... 10%
35-44 .... 16.1%
45-54 ... 35.7%
55-64 ... 32.1%
0ver 65 ....4.8%

Q.9 How old is the cared for ?

under 18 2 ... 2.0 %
18-34 ...30.5%
35-44 ...18.9%
45-54 ... 19.3%
55-64 ...18.9%
over 65 ...22.1%

Q10 ...

Q 11

How many Hours caring ?

1-19 ...22.1%
20-34 ... 15.3%
35-49 ...18.5%
50+ ... 44.2%

Q12

who do you care for ?

Mother/father ... 21.3%
Other relative 9.6%
husband/wife/partner ... 47.4%
friend ... 3.2%
son/daughter ... 31.3%

Q13 adult with mental health ...100%

Q14.

do you feel ignored or overlooked ?

.............................. yes,regularly ..... sometimes
by professionals ...46.1% ..... 39.4%
by your employer .... 17.8% .... 17.4%
by friends .....................27.8% ..... 41.5%
by family ....................29.9% .... . 40.2%
by society in general .. 61.8% ... . 27.8%

Q15 What impact do you feel that being overlooked
has had on your life

made it much more difficult 66.5%
slightly more difficult 27.1%
no impact 5.5%
made slightly easier 0.8%
much easier 0%

Q16 overlooked any of the following problems?

had to give up work 21.3 %
more difficult 34.8%
affected myhealth 61.3%
not adequate support or not right kind 36.1%
I have to provide and repeat information frequently 36.5%
not taken seriously 31.3%
worse off fincially 48.7%

Q17 what impact on friends and family .....

more isoltaed 68.0%
lost friends 43.7%
estranged from family 28.4%
health deteriorated 61.3%
more difficult to cope with caring
Q18. what benefits to being recognised as carer

easier juggling commitments 31.1%
will obtain better support 44.7%
receive increased benefits 28.8%
security that someone knows needs 48.9%
more undertsanding 32.0%
taken seriously 34.2%
received support from family 20.5%
other 4.6%

Q21. What's the longest you've gone without a break?

3 months 10.8%
3-6 months 7.2%
6-12 months 11.7%
< 1 year 33.3%
Never 36.9%

Q22. (a) Have any of the following caused you to come close
to/reach breaking point?

Not being able to take a break 24.7%
Frustration with bureaucracy 41.6%
Lack of sleep 26.0%
Financial worries 31.5%
Feeling isolated/lonely 21.0%
Lack of status 5.0%
Being ignored/not understood 17.8%
Own health 25.1%
Lack of practical support 16.0%
Juggling other commitments 25.6%
Not getting info needed 12.8%
Deterioration of cared-for person 37.0%

Q23. Do you feel you have ever reached breaking point?

Yes 76.4%
No 23.6%

Q24. What would have helped at the time
you were at breaking point?

Flexible working 21.4%
Advice and information 32.9%
More money 30.0%
Practical support 47.1%
Someone to talk to 51.4%
Chance to take a break 41.4%
Less bureaucracy 26.2%
Not being ignored 31.4%

How long have you been a carer

0-3 mths ... 1.3%
3-12 mths .... 0.9%
1-2 yrs .... 6.2%
2-5% ..... 18.1%
more than 5 yrs ... 73.5%

Carer gender
Male 20.7%
female 79.3 %

age

under 18 0.8%
18-34 7.9%
35-44 19.5%
45-54 33.7%
55-64 25.9%
over 65 12.1%

who do you care for

under 18 21.2%
18-34 15.5%
35-44 8.2%
45 - 54 11.7%
55-64 14.9%
over 65 36.4%

No. of hours care provided

1-19 13%
20=34 9%
34-49 13.7%
50+ 64.4%

Relationship

mother/father 25.6%
other relative 7.1%
husband/wife/partner 38.4%
friend 2.6%
son/daughter 36.1%

what best describes the cared for

adult physical 24.6%
adult learning disability 8.7%
adult mantalhealth 11.5%
older person over 65 25.7%
under 18 17.6%
adult/child serioius illness 11.8%

do you feel overlooked/ignored

yes no N/A
pros 86.7% 12.1% 1.2%
employer 32 % 15.7% 51.7%
friends 77.7% 19.4% 2.9%
family 75.9% 22.5% 1.7%
society 96.1% 2.7% 1.2%

what impact on your life being overlooked/ignored

more difficult 63%
slightly more difficult 30.7%
no impact 5.5%
slightlv easier 0.6%
much more easy 0.2%

whathas being ignored/overlooked meant

given up work 25.1%
difficult caring/working 33.4%
affected myhealth 54.2%
inadequate.incorrect support 34.9%
provide and repeat info 40.5%
not taken seriously 28.2% worse off financially 54.9%

What impact being ignored by family/friends?

More isolated 70.8%
lost friends 40.3%
family estrangement 22.4%
health worse 59.6% More difficult caring 73.9%

Benefits from being recognised as carer

easier to juggle commitments 31.9%
better support 49.5%
increased benefits 34.2%
better healthcare 26.5%
security someone knows 48.2%
more understanding 30.2%
beingvtaken seriously 31.8%
informal support friends/family 22.7%
other 4.9%

what's the longest without a break

less then three mths 11.8%
3-6 mths 12.1%
6-12 mths 13.9%
more than a year 28%
never 34.3%

Have any of these see you come near 'breakdown'

no break 27.6%
frustration with bureaucracy 40.5%
lack of sleep 32.8%
money worries 27.0%
isolate/lonely 23.8%
lack of status 5%
being ignored/ not understood 13%
own health 24.7%
lack of practical support 19.7%
juggling commitments 26.2%
not getting information 9.5%
cared for worsening 35.5%

Have you ever reached breaking point

yes 74.2%
no 25.8%
what would have helped ?

Flexible working 19.9%
advice and info 24.8%
more money 30.7%
practical support 56.0%
someone to talk to 51.5%
chance to take a break 49.7%
less bureaucracy 26.2%
not being ignored 26.4%

how long have you been a carer

0-3 mths 0.5%
3-12 mths 2%
1-2 years 6.2%
2-5 years 19.7% more than five years 71.7%