The site is edited by a retired consultant psychiatrist who has looked after someone at home,
affected by the negative form of schizophrenia, for the last fifteen years.
It is a website for carers, family and community, who want to give voice for those who can't, and don't, voice for themselves
For beginners, clicking with the mouse on a highlit item e.g Care Programme Approach [CPA } will take you to the appropriate page.

You absolutely must understand the Care programme Approach and how to deal with it; read the above link and pursue it's links.
You return to the Home Page by clicking on the back arrow button at the top of your internet page; or try pressing the back button on your keyboard,
or there is often a return highlight link at the bottom of the page

*** R !!! marks 'Revised' *** N !!! marks 'New entry' e.g
*** N !!! Good Website for Benefits/work issues................ sample letter july
1. Do H Carers page .... .... .... 2. benefits and job seeking: a guide

I do want to hear from you - no obligation of keeping in touch or continuing a thought - but I need feedback to be sure I am on the right lines with what I am putting on the site - suggestions for new topics ??? and would welcome some encouragement to carry on with fresh or what is incomplete to find out where interest lies - please ?? ... comment please to davidwatch@btinternet.com

The care journey for patient and carer

*** !!! N
1. a remarkable website for victims of homicide by the mentally ill ,, [] N.B. Homicide Report Inquiry List - still updating - the NorthWest Strategic Health Authority have not responded to a Freedom of Information request to see their 'Homicide legacy cases' Reports online.
They seem to want to keep information about possible failures in the delivery of care, to themselves rather than let carers - who are very often involved as principal monitors, sometimes as victims - examine where the faults were, to see that they do not arise in their local mental Health Trust area. ] 2. defining descriptions 3.Why now ? 4. carer and confidentiality 5.

SKIP
to go the next page : column left for topics and their ongoing links [ e.g. Community Treatment Orders and depot regime ]: middle = any new material ; right for current matters .... e.g.
carers lose out again

*** !!! .... NEW excuses and what to do about them why 'they' don't act when act is needed.

C ............y Inquest CONCLUDED - died of natural causes in neglect :- no full reporting so far. Adjourned Inquest heard from 'expert' that 'best interests' would have obliged someone to intervene - but who ? [ summing up ... " the coroner, on Wednesday said that Wandsworth social services or the local Mental health Trust should have invoked their powers under the Mental Health Act to temporarily re-house the unwell man. Dr Knapman said he would be writing to the government warning that hundreds of other people could be living in similar squalor..
He is to ask for a clearer guide as to who should intervene.
? But which of the two services singled out by the Coroner was in charge - the Mental Health Trust was regularly in the lead visiting every fortnight to deliver depot medication treatment
D o H gloss on MHA versus MCA [GJ ] Case three down.
How do carers go about changing the decisions of Professional people [ as here, who decline to use the Mental Health Act ] when carer, who knows more about the sufferer, who sees the sufferer more closely, believes intervention is necessary and warranted.You must get a working diagnosis as early as possible, so that you can prepare yourself for the range of prospects in store for a possible home care commitment.

There will be a Carer Support Worker service in your Mental Health Trust [ ask the Community Mental Health Team at once for their contact number ] area and you should invite them to give you advice immediately, about what aftercare support there is in your area.
They will know the reality in local aftercare delivery from their conversations with other carers before you.
They will put you in touch with carer groups and/or other carers who have been longer in your position, to enlighten you on what to expect from the aftercare NHS services in your area.
If you wait , options will already be closed off for you.

This how one letter writer described care in the community " throwing people back on their own resources regardless of whether they have any, or not. "

That is also my personal experience of 'Home Treatment'. It is offered because 'they' have removed 'beds' so that there is no way back.

'Breaks' where 'cared for' has an outside activity of their own, regular within in the week, are going to be your lifeline to be able to keep caring, and have a liofe of your own. Demand it, right at the beginning[ revise yourself of the CPA ]

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Aftercare *** R !!!Pentreath updated an advanced declaration 'Basic' Psychiatry; anxiety alcoholism etc Coroner Carers and Caring Caring and confidentiality NHS Mental Health Services Police Schizophrenia Tragedies

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*** N !!! This Week: July 25- August - *** N !!! Good Website for Benefits/work issues Previous weeks What is it that we are trying to make up for in residual schizophrenia.? Family carers know that an established routine helps for the day and the week It is there as a reminder to prepare for daily living . An established routine for the week ahead helps by raising something definite in memory to be ready for. Many studies with patients indicate uncertain memory storage systems Old stores and interests are better kept, but are not so relevant to current issues in living. It's a common ordinary observation. They are not always'there'. Sometimes having to be 'led' , to be tuned in and held along in conversation. There is no evidence that people with schizophrenia have more fleeting or off-the-mark memories than healthy subjects. Rather, they are unable to simultaneously hold as many items at once in working memory Working memory, the ability to briefly store and manipulate information, guides goal-directed behavior through other cognitive processes. A more recent such investigation of 'working memory' has it that the 'memory pool' is reduced in schizophrenia. Participants were clinically stable on medication. They were presented with three or four different colors on a computer screen. After a pause when the screen went blank, subjects were to indicate the color shown in a particular spot by selecting and clicking on it on a color wheel. Subjects who stored the color in memory and recalled it when tested should select colors similar to those previously shown. The results suggest that schizophrenia reduces working memory capacity, causing subjects with schizophrenia to store fewer items. The length of delay made no difference in either the number of items recalled or the precision of recall for either control or patient group, contrary to expectations of less stable memories in schizophenia. ' Memory difficulty in schizophrenia is characterized primarily by reductions in storage capacity and not by an instability of the working memory representations ' There is not always enough memory available to deal with what is happening. The information held in the memory store inside the brain, that has accumulated from experience is brought to bear on what is perceived to be happening 'outside'. It is to make sure it fits in with the personal context of the one perceiving, Any significant consequences is set against a memory hinterland. Do I have tohold this in mind, as I attend to what is going on? Consciously perceiving is not just locally given attention. It needs the application of a wave of gamma activity that is making a connected network in the brain, to give it meaning and value. In order for neuron 1 to communicate to neuron 2 it does so best and clearest if the two are in a synchronised wave Perceiving a tree requires the synchronising of bits of it that might be dealing with it separately – height colour recognition that require different parts of the brain to contribute. The synchronising of the wave means the information can be bound together at the same time to give the image and it's context. The pattern of synchronising in the brains of schizophrenia are less extensive or not so well formed.. This might lead to one area losing out – maybe the one that decides whether some thing is coming from outside perception, or from inside a thinking memory construction, leading to misperceived 'voices' ; or perception might get linked to the wrong group of synchronised cells – a delusion A reduced 'information pool' may not be doing such a good examining job. Things immaterial may be allowed in and become fitted in somewhere, unchecked.. An established routine gives a stable outside framework. As it becomes predictable it builds up a new habitual memory store. It does not require so much working memory. With the routine regularly in place there is less call on an active working memory pool than if there was no such order in place. Internal order is be helped by external order. A reduced working memory pool makes it impossible for the sufferer on their own to bring an outside routine into order themselves. Too many mistakes follow from the reduced working memory pool. Mentoring, finding, promoting establishing, supporting the routine needs the help of someone else with prior access to the appropriate resource. It's a professional job. That is why Mental Health Trust Services which do not have a Rehabilitation and Recovery service have a Service Deficiency. Where staff see such a deficency there is a Service Deficiency Form be made out. Clinical leads present to the Managers and Commissioners so that they register and plan to deal with the Unmet Need. Where the Form does not go in, managers can continue to be in denial - how were we to know this - no clinician told us that this was a clnical need What is there for Carers to do. Ak whether there is such a Form to point out the Deficiency, and ask in writing to the clinical lead and to the local Chief Executive that one is made out. More on this during August - next weekly letter in September

a good ' insider' website:- pamshouse: a guide for carers

since May 2009 3,500 'hits'

Re- started since February 1st 2010.

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